Patience is a virtue because it makes us better people. The definition of the word is to tolerate delay. This implies self control and forbearance as opposed to wanting what we want when we want it. All we can do is wait and then call...
Cali and Ryann have both had their new MRIs done now. The Pediatric Radiologist tells us that they both have the same pattern of severe atrophy to their cerebellum. Yeah we already knew that but thanks. Now our Neurologist is going to...
It is absolutely ridiculous how slow the medical industry moves. I cannot tell you how many phone calls it takes to get anything done. Its crazy to me how many phone calls it takes to get people to do their job. If...
The most important part of life are friendships. I truly believe this and live by this. I am with my friends as much as possible. Heck, I am on facebook looking at what my friends are doing on a daily basis. Friends...
I would like to start off by saying something very important. THANK YOU to all of our wonderfully amazing family and friends. I have never felt so much love and support and it means the world to me. I can face what I...
After our two hour neurologist appointment this morning its pretty safe to say that Cali and Ryann both have the same "thing". Whatever that "thing" is. Their "thing" is not specifically diagnosed but put into the category of Spinocerebellar ataxia. I went ahead...
Waiting, waiting, waiting. I keep looking at my list of people that I have contacted with Cali and Ryann's MRI images and information to see if anyone can help us or refer us to someone who may be able to help us. I email,...
One day at a time, I have to keep telling myself that over and over. It's so surreal to think we are facing what we go through with Cali all over again with our new little baby Ryann. Its almost worse now that I know...
You would think by now I would know the protocol and routine for doctors. I decided to get my entire family up at 5am and drive an hour up to LA, in traffic of course, to find out that we were supposed to have an...
To Whom It May Concern: 2-23-10My name is Cristy Spooner and I need your help. I would first like to say THANK YOU in advance for reading our story and trying to help our family.We have three daughters, Cali (11yrs) Rae (4yrs) and Ryann (10...